Chief Foreign Correspondent Richard Engel announced Thursday that his son Henry, 6, has died.
βOur beloved son Henry passed away.Β He had the softest blue eyes, an easy smile and a contagious giggle.
Richard Engel said
Richard Engel said
Engel shared a link to a memorial page on the Texas Childrenβs Hospital website
which offered more details about Henryβs life and his diagnosis of Rett syndrome, a genetic brain disorder without a treatment or a cure.
which offered more details about Henryβs life and his diagnosis of Rett syndrome, a genetic brain disorder without a treatment or a cure.
According to the National Institute of Neurological Disorders and Stroke, Rett syndrome can cause loss of use of the hands, problems with walking, seizures, slowed brain and head growth and intellectual disability.
Born on Sept. 29, 2015, Henry was slow to reach certain developmental milestones as an infant
After a series of medical exams and a genetic test, doctors discovered that he had a mutation in his MECP2 gene.
βMECP2 mutations cause Rett syndrome, a disorder that typically affects girls after their first birthday